One day at a time!

Well, we only had to wait two hours this time...I guess that's better?


Overall, it was a decent appointment.  Jameson's eye is in remission!  This was the best case scenario that we had prayed for, so praise God!  We finally got to talk a little more about the surgery, which will be set for the very end of May or early June.  So many of you have been praying with us for this needed remission and we really appreciate it.  For those of you who might potentially get super excited (like we used to) and link this current remission with a guaranteed surgery date, we must invite you to hop on to the uveitis roller coaster and join the ride.  Three months of remission is needed for surgery.  We've made it to two months and three weeks before--all ending with a flare up that last week and erasing the plan for surgery.  So, baby steps!  We say one day, one week, one month at a time.  We'll celebrate after the surgery is completed.  :)


He did have a significant decrease in vision (the most we've ever seen), so it was a sobering reminder that the cataract is in there and showing it's presence.  It needs to come out!


We are thankful for a good report, thankful for remission.  But even more thankful that we don't have to expend energy worrying about future surgery plans and if this remission will sustain until June.  God is writing the pages of Jameson's life, ideal or not so ideal, and we're beyond blessed to live this with him!


"Therefore do not be anxious about tomorrow, for tomorrow will be anxious for itself.  Sufficient for the day is its own trouble." (Matthew 6:34)

Eye check-up!

We are two infusions down and will be heading into Boston tomorrow for an eye check.  We'll finally find out if Remicade is doing the job at putting James' eye into remission.  Since having the infusions, the arthritis in his finger has gone down and his rheumatologist said that it does not look as active and inflammed as it once did.  We can see the difference too...it's absolutely not as swollen and tight looking! Praying that his eye benefits in the same way.


His second infusion went just as well as his first.  All went smooth; IV went in great and he had no reactions--other than the Benedryl getting the best of him--leaving Elliott to have the Wii all to himself (hard day for Ell!).  Overall, he is tolerating his Remicade well---no side effects so far (that we can see).


Pray with us that the infusions are working to get him into remission so that he can have surgery.  And a wee bit smaller request: to not have to wait another 3.5 hours in the waiting room to see the doctor.  ;)


Will update more tomorrow!

Infusion #1

The first infusion went great!  It could not have gone any better, in fact.  The nurses were so pleasant, so informative, sweet to Jameson, overly accommodating to all of our needs and made us feel so comfortable with the whole process.

He has had no allergic reactions to the Remicade, so that's great.  In regards to the toxicity of the drug, it will take some time for the full amount to get into his system and affect his liver, if it is going to.  Time will tell regarding whether or not his system will tolerate it AND if it's helping his eye inflammation.

He has an eye appointment this Tuesday.  It would be great for all of the inflammation to be gone (then we can begin the three month countdown of steady remission required for surgery), although it is too early for Remicade to show its full potential.  We'll take what we can get!

Here he is hooked up to his IV and also enjoying a good dose of unlimited Wii time.  We had brought some school stuff to work on but in the end, I didn't have the heart to pull it out.  He's such a hard worker and a trooper for all that he goes through.  Friday was a "pamper Jameson" day!  :)