Jameson's journey with uveitis and juvenile idiopathic arthritis.

~~~~~~~~~~~~~~ Jameson's Journey With Uveitis And Juvenile Idiopathic Arthritis ~~~~~~~~~~~~~~

Be joyful in hope, patient in affliction, faithful in prayer.

Romans 12:12

Friday, June 8, 2012

An overdue update

Hi Everyone,


I can't believe it's been one whole month since the surgery and I haven't done a formal update on this site.  I'm a really bad blogger and it's an accurate indication of how much we've been juggling!  We know most of you are well aware of how Jameson is doing, but I just want to officially fill you in on where we're at in this process.


His surgery went as smooth as possible.  He recovered well and his Dr. was shocked at how rapid his vision responded once the cataract was removed. His vision went from 20/300 to 20/25 in less than 24 hours.  Amazing! There were no complications but he did put a microscopic stitch in his eye to further reinforce the closure of the incision since Jameson's so young and not necessarily gentle all of the time with his eye.  There's potential that this stitch might aggravate him, which would then require another quick surgery to remove it, but so far, no complaints and we're hoping it stays that way!


He's still in the recovery phase... a lot of medications to control all of the inflammation that the surgery caused.  Eye surgery sparks inflammation in ANYONE who needs it, but in a uveitis patient (one who battles inflammation on a regular basis), recovering from surgery is harder, longer and requires more meds to be sure the inflammation truly gets under control. Any lingering inflammation increases the chances that his eye will reject the artificial lens that was implanted. But we're not going to think that way!  So far so good, and he'll have another check up within the next two weeks to see how he's recovering now that we're almost one month out of surgery.


We did want to clarify where we go from here.  The surgery was to remove the cataract, a side-effect from all of the steroid eye drops used to control his uveitis.  The surgery, of course, did not wipe away his disease and he will continue on with infusions every four weeks to control the uveitis for quite some time (at least a year).  Thankfully, he continues to tolerate these infusions ideally: they're keeping his uveitis in remission and his organs are tolerating the drug just fine. Another answered prayer!


Thank you all again for everything that has been poured upon us during this very busy time: prayers, meals, child-care..the list goes on and on.  We have a wonderful support network around us and we are so grateful for how God provides during our times of need.