You-vee what?? I remember thinking as our local eye
doctor told me that we'd need to treat Jameson with "some eye drops
temporarily". Fast forward a bit and words like uveitis,
glaucoma, idiopathic, psoriatic, methotrexate, durazol, cellcept, etc, are
all words that I never would have imagined infiltrating our life the way they
have in the past two years. I had no idea that such active relationships with
eye specialists and rhuematologists were looming in the horizon.
It sometimes feels like this has been a life-long journey, although we know it is just the beginning. As much as we don't like to see any of our children struggle or suffer, we are so thankful for Jameson, how God made him and who he is becoming. His disease has been life-changing for us as a couple and also for our family. He has endured more things medically in his short 6 years than I have in almost 31. And as I write this, I think of all of the families that we know personally who endure much heavier medical hardships and my heart aches for them all. Health is a mere gift--not an entitlement, as I once so naively assumed.
Light shines into darkness and miracles grow out of difficulties. Our family has lived and seen this first hand in the past two years in areas other than Jameson's disease. Our journey for sight continues, but it's not just practically for Jameson's sight. It's also to seek, watch and cling to God's hand on our day to day lives--to be encouraged and comforted by it, and ultimately praise Him for the abundant blessings that He pours out onto us daily.
We hope this site keeps everyone updated and we'll try to be diligent in updating it after his major appointments. Sometimes it feels as if we're drowning in all of the information so it's hard to keep everyone continually updated the way we'd like to. We know so many of you want to know, want to pray, want to help---so we hope that this site will provide everyone with the information that they are looking for.
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