Jameson's first infusion is going to be this coming Friday, 9am! We were told to prepare for a five hour stay at Hasbro. I say "stay", but it's sounding more like a retreat: we were told there will be face painting, crafts, tv, a movie list to choose from, and VIDEO GAMES (I'm wondering if he'll want to come home?). And how could I forget, free lunch for all of us! This boy is going to be just fine on Friday. ;) In a strange way, it almost feels like Elliott will be missing out! We do see him attending an infusion appointment in the future, but for this first time we'll be keeping it at Dad, Mom and James. They will pump him full of Tylenol and Benedryl (standard practice) due to allergic precautions during the infusion. Hopefully he'll stay awake to experience the endless list of goodies! (Or maybe the three of us will have the chance to take some much needed naps?!)
On a different note--call it hormones, emotions, weakness, living in a complete naive bubble for most of my life--I'm sort of dreading the scene in this infusion center. It's Hasbro's hub for chemotherapy, and being a children's hospital, it's going to be really hard to take a look around the waiting area and infusion rooms. What a dose of perspective... We (I) really need to keep it together, mainly for Jameson. He is a boy that reads into things; tears never go unnoticed.
We'll be specifically praying that he will experience minimal discomfort from the IV and that his new meds will be well tolerated. Thank you again for all of the sweet blessings that SO many of you have poured out onto us, in one form or another!
"But for now, ask yourself what it is that God might be trying to teach you or free you from, even in the experience of your fears. The trials that you face are not the result of God's powerlessness; they're a sign of His loving care."
Jameson's journey with uveitis and juvenile idiopathic arthritis.
~~~~~~~~~~~~~~ Jameson's Journey With Uveitis And Juvenile Idiopathic Arthritis ~~~~~~~~~~~~~~
Be joyful in hope, patient in affliction, faithful in prayer.
Romans 12:12
Everything is going to be okay! Keep a grateful heart..Psalms 138.........ox
ReplyDeleteWe'll be thinking of you all and praying for James and strength for his mom and dad!
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